Boy, 13, diagnosed with motor neurone disease

The household of a lad surviving with centrifugal neurone illness person said it was a "massive shock" for him to beryllium diagnosed astatine the property of 13.

Kyle Sieniawski, from Pontypridd, Rhondda Cynon Taf, started to suffer mobility successful his near limb past twelvemonth earlier experiencing different neurological symptoms.

Almost a twelvemonth aft she archetypal noticed the symptoms, Kyle's mum told Radio Wales Breakfast that his conditions had deteriorated to a constituent wherever helium tin nary longer provender himself.

Motor neurone illness (MND) is astir communal successful adults implicit 50 and Kyle is believed to beryllium the youngest idiosyncratic successful the UK with the condition.

Kyle was diagnosed with MND connected 17 January - astir a twelvemonth aft his mum Melanie archetypal noticed symptoms.

"He wasn't walking consecutive and was utilizing 1 limb to enactment the other," she said.

Kyle was initially taken to the Royal Glamorgan Hospital successful Rhondda Cynon Taf for tests followed by an MRI scan.

Doctors initially thought helium had enterovirus which is an corruption that tin origin unwellness successful babies, children, and teens.

But his household became acrophobic erstwhile his information began to deteriorate further.

"In October his close limb started to go a spot shaky. By November helium was struggling to locomotion up the stairs," his mum said.

Kyle's aunt Heather thought it was MND aft researching the symptoms, but it inactive came arsenic a "massive shock".

"With the tears that person been spilled the past fewer months it's been similar a river," said Heather.

Kyle needs enactment erstwhile eating and walking and has spent the past fewer weeks astatine Noah's Ark Children's Hospital successful Cardiff.

Heather said it was "unbelievable" helium was truthful cheerful, which was having a affirmative interaction connected the remainder of the family.

"I don't deliberation a batch of children would respond successful the aforesaid way. He is an inspiration," she said.

The teen spends his clip playing games with his household including Connect Four, and has a VR headset that allows him to ticker films hands-free.

His household said they felt "really positive" aft discussions were held astir a objective proceedings which could dilatory down the disease.

But they were near "devastated" aft it was enactment connected pause.

The household said they felt determination is "no hope" without the trial, according to Heather.

"It volition marque a difference. I'm hoping due to the fact that helium is truthful young helium has the vigor to combat it," she added.

Heather said the effect from the assemblage had been "absolutely outstanding" with radical mounting up fundraisers "left, close and centre".

"One woman adjacent offered a luxury caravan truthful the household tin usage to walk immoderate clip with Kyle. It's been amazing. I can't get implicit it," she said.

MND is simply a comparatively uncommon information which is astir communal successful radical implicit 50, but adults of immoderate property tin beryllium affected.

A person's beingness hazard of processing MND is 1 successful 300, according to the MND Association.

MND affects up to 5,000 adults successful the UK astatine immoderate 1 time.

A person's beingness hazard of processing MND is 1 successful 300.

Source: NHS