DART walk at Greenwich Point raises $175000 for research into treatment of very rare disease - Greenwich Time

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GREENWICH — More than 300 radical stepped up astatine the 5th yearly DART to The Finish foundation locomotion to rise much than $175,000  to payment Dana’s Angels Research Trust

The lawsuit took spot Sept. 24 astatine Greenwich Point Park successful Old Greenwich, with virtual participants crossed the country. 

The proceeds enactment probe into treatments, objective trials and familial investigating for Niemann Pick benignant C disease, a precise uncommon puerility illness often referred to arsenic puerility Alzheimer’s.

“What a beauteous time we had for our 5th yearly DART to The Finish foundation walk,” said Andrea Marella of Greenwich, a co-founder of DART. “We privation to convey everyone who walked with us, some in-person and virtually, to assistance america rise funds for uncovering amended treatments for NPC. This twelvemonth has had a batch of advancement with perchance moving 2 life-saving treatments guardant with the FDA, and the funds raised astatine this locomotion volition assistance further probe connected these and different imaginable treatments for children impacted by NPC."

Andrea Marella founded Dana’s Angels Research Trust successful 2002 with her husband, Phil, aft 2 of their 4 children, Dana and Andrew, were diagnosed with the disease. Dana died successful 2013 astatine property 19. But Andrew, who turned 23 successful June, is improving owed to his enrollment successful a objective proceedings to dilatory the progression of the disease. 

He is capable to walk, speech and clasp a part-time occupation astatine the Prospector Theater successful Ridgefield, which was lone a imagination earlier DART started raising funds for treatments, Marella said.

“DART has been solely focused connected uncovering amended treatments and yet a cure for NPC for the past 20 years,” said Phil Marella. “When our girl Dana was archetypal diagnosed, truthful small was known astir NPC. There were nary treatments, nary objective trials, nary hope.  Most children with NPC passed distant successful their aboriginal teens. 

“Today, with the assistance of DART, we person changed that picture. DART and its partners person spearheaded 8 objective cause trials and developed newborn humor tests for aboriginal diagnosis of NPC,” helium said. 

To date, DART has raised much than $6 cardinal that has gone toward the hunt for a amended attraction and yet a cure for NPC. 

Tamarack hosts Big Brothers Big Sisters fundraiser 

Big Brothers Big Sisters of Connecticut held its yearly Mentors Classic Golf Tournament connected Oct. 11 astatine the historical Tamarack Country Club successful Greenwich.

Among those taking portion successful the lawsuit were Joe Massoud of Westport, managing manager astatine Westport-based Anholt Services Inc; Andy Fleischmann, president and CEO of Big Brothers Big Sisters of Connecticut; and Peter Lovell of Milford, a elder vice president and wide counsel for Odyssey Re successful Stamford.

Massoud is besides a committee subordinate astatine Big Brothers Big Sisters and serves arsenic a unpaid mentor Big Brother successful the organization’s community-based program. He besides served connected the Mentors Classic organizing committee and was 1 of the event’s Emerald Sponsors.

Lovell besides served connected the event’s organizing committee. He is simply a erstwhile committee subordinate astatine Big Brothers Big Sisters and a onetime Big Brother.

The lawsuit included a luncheon buffet, cocktail hr and meal with a programme successful summation to the play tournament. 

Manhattan College receives $15 cardinal gift

Thomas O’Malley of Greenwich, seat of the Board of Trustees astatine Manhattan College and a large donor to the college, has overseen a grounds $15 cardinal acquisition to the college’s School of Science.

The caller donation to the School of Science is from Michael Kakos, a subordinate of the Class of ’58, and his wife, Aimee Kakos, of London and Florida. Their acquisition volition beryllium utilized to summation pupil scholarships and grants, enactment innovative teaching and research, and heighten and diversify learning opportunities.

In 2018, O’Malley donated $25 cardinal to heighten learning opportunities astatine Manhattan College’s School of Business. The acquisition was the largest successful the college’s history. 

“The Kakos person agelong been generous donors to Manhattan College, and this acquisition underlines their committedness to providing students with the tools and experiences they request to marque a quality successful the world, ” said O’Malley.

The caller acquisition is simply a continuation of the Kakos’ giving to Manhattan College, which began erstwhile Michael Kako graduated successful 1958. The college’s School of Science volition present beryllium known arsenic Kakos School of Science.

“We are incredibly arrogant to enactment Michael’s alma mater, Manhattan College,” said Michael Kakos and Aimee Kakos. “This acquisition volition assistance nurture the adjacent procreation of innovators, giving them the tools and opportunities to marque a profound quality successful the world. The experiences Michael had connected this field shaped him arsenic a idiosyncratic and acceptable him connected the way toward a palmy career.”

The Kakos’ $15 cardinal acquisition volition supply needs-based world scholarships for undergraduates, scholarships for students to survey abroad, funds to enactment probe by undergraduate students, grants to enactment innovative world and probe projects, and wealth to modernize the school’s equipment, laboratories, and different facilities.  

“This transformative acquisition volition instrumentality our School of Science to a full caller level, further establishing Manhattan College arsenic a premier destination for students looking to prosecute an undergraduate grade successful a STEM field,” said Brother Daniel Gardner, president of Manhattan College. 

Michael Kakos founded Resin Express successful 1987, which distributed engineering thermoplastic earthy materials for large worldwide producers and suppliers. Aimee joined the institution successful 1989, yet rising to institution director. They sold the institution successful 1997. 

The Kakos are besides supporters of Aimee’s alma mater, Pennsylvania State University, and galore different charities.

Founded successful 1853, Manhattan College is an independent, Lasallian Catholic, coeducational instauration offering much than 40 large programs of undergraduate study. Manhattan College is located successful the Riverdale conception of the Bronx, N.Y. 

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