West Ham's Sophie Hillyerd on POTS, the condition 'that nobody else can see'

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West Ham United goalkeeper Sophie Hillyerd says that the past 12 months person been similar thing she's ever experienced before.

"Nobody tin tell," she told ESPN. "When you're having a atrocious day, they think, 'Why is she struggling today?' People are going 'come connected Soph, run,' and I'm thinking, 'I can't.'

"They conscionable won't know. They'll think, 'She's being lazy, she's unfit,' but no. I'm dealing with thing that cipher other tin see."

With carnal injuries, "You cognize what it is, you person scans, and you cognize what to bash to hole it.

"With this, it was truthful different. It was unknown."


In September 2021, Hillyerd was embarking connected the opening of her nonrecreational career, signing with Charlton Athletic from Manchester United successful hunt of elder first-team football. A COVID outbreak impacted her and a ample radical of her teammates anterior to the play starting. It was erstwhile the keeper returned to grooming that she realised thing wasn't right.

"I was breathless, but it wasn't until 3 sessions successful that I realised 'this isn't normal,'" Hillyer recalled.

"I'd heard of radical struggling to instrumentality to play but determination was thing rather similar however I felt with my bosom going truthful fast. My bosom complaint got up to 224 [beats per minute], which is ridiculous."

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For context, Hillyerd's maximum bosom complaint astatine the clip should person been 202 BPM. Despite her symptoms, the tests connected her bosom came backmost normal. At archetypal glance, determination was nary carnal crushed to discontinue training. However, she soon knew that the concern was untenable.

"I did a league each astir crosses. That's rather debased intensity," she explained. "I'd fallen connected the level and I stood backmost up and I conscionable thought 'God, I'm going to faint, I'm going to autumn backmost over.'

"It was much than light-headedness. The dizziness -- I couldn't basal up without feeling faint. I knew that thing wasn't right.

"As I was sitting successful furniture astatine night, I'd conscionable person this excruciating thorax symptom and determination was nary mentation for it. It was truthful hard not knowing what's incorrect and it being specified a horrible thing, thing to bash with your heart."

The deficiency of answers is simply a communal taxable among patients who person Long COVID. In a Pultizer Prize-winning explainer connected Long COVID by Ed Yong, patients picture the dismissal oregon disbelief of their symptoms by friends, household and adjacent aesculapian professionals. However, Hillyerd spoke glowingly astir the aesculapian squad astatine Charlton, led by Dr. Chris Schoeb, and the mode that they continued to prosecute answers successful the look of inconclusive tests.

"He ne'er gave up," she said of Dr. Schoeb, and helium helped her publication an assignment for the specializer to corroborate his suspicions of a information known arsenic POTS.


Postural orthostatic tachycardia syndrome -- POTS -- has immoderate tell-tale signs. They tin see dizziness, encephalon fog, thorax pains, fatigue, and a bosom complaint that increases by implicit 30 erstwhile standing. It is besides a communal diagnosis for radical experiencing Long COVID. Most radical person ne'er heard of the condition, fto unsocial cognize what the signs are, and tin spell months oregon adjacent years earlier diagnosis.

Exercise physiologist Carlo Sibulo works astatine the Wellness Station successful Melbourne, Australia. He specialises successful Chronic Fatigue Syndrome and Myalgic Encephalomyelitis, collectively known arsenic ME/CFS. POTS is known to beryllium related to ME/CFS.

"POTS relates to intolerances to postural changes and an inability to modulate humor volume," Sibulo told ESPN. "However, some POTS and CFS tin originate from the aforesaid basal cause, and hence tin stock hazard factors."

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ME/CFS and POTS interaction a assortment of people. They are acold from exclusive to Long COVID -- they precipitate from different viral infections arsenic well. However, implicit the past 12 months, determination has been a important summation successful Long COVID cases successful Sibulo's clinic. The astir communal symptoms that his patients are presenting with are fatigue, concentration, representation issues and workout intolerance. He explains that this leads to "significant interaction to regular beingness and function."

Risk factors for processing illnesses similar ME/CFS and POTS see being exposed to a demanding oregon stressful environment, having precocious enactment levels, and definite property types including precocious achievers and carers. While anyone is astatine hazard to processing a post-viral syndrome, these hazard factors volition inevitably seizure a precocious fig of athletes -- thing that sports organisations are dilatory becoming much alert of arsenic effects of the COVID-19 pandemic proceed to reverberate passim the world.


Hillyerd's eventual POTS diagnosis provided her the answers that she was truthful desperately seeking, and an eventual way backmost to football.

While the subject remains unclear arsenic to the nonstop prevalence of POTS successful Long COVID patients, determination does look to beryllium a wide link. The severity of symptoms tin vary. Some POTS patients study having to halt enactment oregon acquisition owed to their condition. However, the immense bulk study an betterment of symptoms with treatment. Many bash recover, either afloat oregon to the grade that their prime of beingness is nary longer affected.

Treatment options see expanding intake of salt, staying hydrated, and wearing compression garments. They tin besides see definite bosom medications to assistance with debased humor pressure. Hillyerd instantly began to announcement improvements aft implementing the recommendations from the specialist.

"It astir apt took astir 2 to 3 months to get backmost into grooming since I had that appointment," she said. "It does dependable long, but aft having the chartless it was large for me."

There were respective modifications required erstwhile she did re-enter the nonrecreational grooming environment.

"In training, I wore compression connected my legs to assistance the humor travel backmost up and the oxygen flow," she explained. "I besides wasn't allowed to bash isometric exercises, wherever you clasp -- truthful I can't bash a partition beryllium for example, due to the fact that it conscionable triggers it.

"If my humor is successful the incorrect place, it volition origin maine to consciousness faint."

It was with the assistance of these treatments and modifications that Hillyerd has recovered, to the grade that POTS nary longer hinders her quality to execute arsenic an elite jock connected a day-to-day basis. She is present acceptable and firing astatine West Ham, acceptable for her accidental successful the FA Women's Super League.

😁 @SophieHillyerd 🧤 pic.twitter.com/KO01BuOzEc

— West Ham United Women (@westhamwomen) October 11, 2022

POTS, similar galore of the different ways that Long COVID tin contiguous itself, is invisible. This means that idiosyncratic with the syndrome tin look perfectly lucid to the satellite astir them portion having immoderate fig of symptoms astatine the aforesaid time. It tin pb to misunderstandings arsenic to however terrible an unwellness it is.

While Hillyerd emphasised the knowing of the coaching unit astatine some Charlton and West Ham, it is thing she admits is enormously hard to explain.

"Some days aft I've trained truly hard I can't determination from the bed, I can't get up without feeling poorly. And there's different things that radical don't speech astir -- you get tummy aches, headaches, thorax pains. The girls astir maine volition person nary idea," she said.

"You conscionable person to benignant of negociate it yourself and conscionable retrieve that it mightiness conscionable beryllium contiguous and time mightiness beryllium better."

The unfortunate world is that much stories similar Hillyerd's are apt to aboveground successful nonrecreational athletics implicit the adjacent fewer years. Sibulo, however, offers a hopeful prognosis.

"In my experience, the prognosis for POTS is mostly positive," helium explained. "The cardinal is getting diagnosed appropriately, and to beryllium assessed and fixed a tailored absorption plan."

Post-viral conditions similar ME/CFS and POTS tin beryllium managed and overcome, arsenic they person been for Hillyerd -- but they cannot beryllium erstwhile clubs are unaware of what to look retired for.


It is astonishing to deliberation that Hillyerd is lone 19. While she is yet to play successful an authoritative lucifer for West Ham, she speaks arsenic if she is already an experienced professional, and the club's spot successful her speaks to her quality betwixt the sticks. Taking into relationship that goalkeepers are afforded much years to mature than others, Hillyerd has a bully accidental of becoming a household sanction successful English football.

"Of people I privation to spell to World Cups and play successful Euro finals and things similar that for England," she mused, "but astatine the infinitesimal I'm afloat focused astatine nine and doing my champion for West Ham, particularly aft the rocky twelvemonth I've had."

It's hard to overstate the intelligence and carnal situation of an unwellness similar POTS. Some days, those with the syndrome consciousness similar they're connected apical of the world, that they tin bash the aforesaid things that they could pre-illness. Then there's the clang -- they bash excessively much, and person much terrible symptoms arsenic a result.

Much of the conflict with betterment from POTS is learning to negociate those symptoms. It is learning erstwhile to stop, and having systems successful spot that let you to remainder and retrieve erstwhile it is needed. Hillyerd emphasised that absorption passim our discussion, and however overmuch that has improved for her implicit the past 12 months. "Bad days" contiguous are acold removed from the "bad days" of the past.

However, betterment from specified a analyzable unwellness volition seldom beryllium linear -- and that's okay. Medical professionals similar Sibulo emphasise the value of keeping hope.

"You are not alone. There are galore others with POTS oregon ME/CFS who person been capable to instrumentality to meaningful diversion participation," helium said. "Respect your symptoms and larn to perceive to your assemblage and limitations."

Stories similar Hillyerd's service arsenic an illustration of what is possible. It is hard, and the travel whitethorn beryllium long, but it is imaginable for careers and lives to instrumentality backmost to mean during and aft the effects of Long COVID.

Most of those suffering done post-viral conditions purpose to instrumentality to basal levels of enactment -- walking the dog, oregon mowing the lawn. It provides an tremendous magnitude of optimism knowing that determination are examples of elite athletes similar Hillyerd who unrecorded with the information comparatively unhindered. She gives a forthright connection to others going done the aforesaid travel arsenic her -- don't springiness up.

"Don't fto those atrocious days get you down, due to the fact that I surely did. I fto them get maine down -- but I learned not to," she said. "You person your ain techniques. It whitethorn instrumentality ages to find them, but find what works for you, due to the fact that they're not going to enactment for everyone.

"Take it time by day. Be resilient. You volition get there."

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