What happens to disabled people when parents die?

"Get a job, autumn successful emotion and find a location of my own."

These were the beingness ambitions Ellie gave aft her mother's crab diagnosis prompted a superior chat astir her future.

There are fears astir what volition hap to thousands of adults with terrible learning disabilities erstwhile their parents dice - with 75% believed to person ne'er moved out, according to charity Mencap.

But a radical of young disabled friends are looking to "change the system" and physique a location of their ain to unrecorded successful with carers.

At her mum's house, connected the the Gower peninsula, Ellie Lane is keen to amusement disconnected her bedroom.

It has a not-so-subtle Harry Potter theme.

The 24-year-old's favourite character, Draco Malfoy, appears connected bedsheets, posters and successful life-sized cardboard cut-out form.

She is hoping this postulation volition soon beryllium pursuing her to a location of her own.

Not truthful agelong ago, Ellie's mum Jane was diagnosed with cancer.

It was the benignant of wellness scare that prompted a superior chat - the taxable of which was, what precisely did Ellie privation from her life?

The reply was simple, arsenic Jane explained: "She had 3 ambitions. First of all, was to autumn successful love.

"Second, was to get a occupation that was paid.

"And the 3rd 1 was to permission home."

Ellie's neatly laid-out enactment azygous and grinning pictures with her fellow amusement she's been palmy with the archetypal two.

The last 1 though, arsenic for truthful galore people, has proved overmuch harder.

Ellie has Down's syndrome and Type 1 diabetes, truthful volition request enactment wherever she goes.

While adults with learning disabilities tin use to their section authorization for housing, options are limited, according to Jane, a recently-retired nurse.

Ellie would get small accidental successful wherever she went oregon who she lived with.

Charity Mencap said astir 3 quarters of adults with a terrible learning disablement inactive lived astatine their household home, with parents often telling unit they hoped to outlive their children, for fearfulness of wherever they mightiness extremity up.

With the crab diagnosis giving Jane a caller "focus", she recovered a radical of akin families adjacent - galore aged schoolhouse friends of Ellie's - who were looking to commencement thing called a lodging cooperative.

It is simply a benignant of lodging that has existed since the 1800s, and much commonly sees houses shared betwixt groups of like-minded radical - similar those hoping to unrecorded off-grid.

Each nonmigratory has an adjacent stock of the location - and gets a accidental connected however it is maintained and who other lives there.

After astir 7 years, the radical judge they are conscionable a fewer months distant from legally becoming a lodging cooperative - which volition let them entree to lodging grants to physique their home, without the families having to enactment immoderate wealth successful themselves.

The group, made up of 8 families, privation the exemplary to connection their children a surrogate household - on with a unafraid spot to unrecorded retired their remaining years, agelong aft their parents are gone.

For Ellie and her friends, their hopes are much immediate.

They are looking for determination adjacent to Swansea metropolis centre, perfect for nights retired with friends.

They would similar to person their ain chamber and bathroom, but stock a room and surviving room, with abstraction for live-in carers.

"I conscionable privation my ain abstraction and to person the champion clip of my life," said Ellie.

"We could person a girls' nighttime successful - oregon a girls' nighttime out.

"I conscionable privation to beryllium much independent."

Planning to unrecorded with Ellie is Elin, 26, from Swansea.

Her mum Alison besides accelerated the hunt for a semipermanent location for her girl aft becoming earnestly unwell.

"One of the things Elin has often said to maine is 'who is going to look aft maine erstwhile you’re gone?'," explained the 59-year-old.

"She loves Lego and she loves Disney. She enjoys her life, but we're 30 years older than her. It's not perfect for a 26-year-old pistillate to beryllium spending each their societal clip with their parents."

The anticipation is they volition beryllium successful their caller location by 2026.

The radical presently meets erstwhile a period to signifier cooking, arsenic good arsenic chatting astir décor.

Alison said the parents had considered trying to money the task themselves, but realised they risked inactive being tied into their children's lives agelong aft they had the capableness to assistance them.

"We privation this to beryllium a caller mode of doing things, 1 which volition alteration the system," said Alison.

In Wales, determination are astir 16,000 adults with a terrible learning disability, but lone 4,000 of them are surviving successful supported accommodation.

It is thought the remaining 12,000 - 75% of the full - inactive unrecorded astatine home.

"What you ever get blown distant by is erstwhile families accidental to you 'I anticipation they dice earlier I do'," explained Wayne Crocker from Mencap.

"That's an atrocious spot to beryllium arsenic a parent."

Mr Crocker said the lodging concern for those with a terrible learning disablement was "complex".

But ultimately, astir 20 years since the past instauration closed successful Wales, determination was inactive excessively small lodging banal - and excessively overmuch anticipation connected families.

"Lots of radical unrecorded with their parents until sadly they pass," helium said.

"For galore it means there's the daze and the sadness of losing their mum oregon dad, and past abruptly they're having to find exigency accommodation too."

The Welsh authorities said it is "committed to improving accessibility successful societal housing" and has invested successful gathering caller homes for this purpose.

It added it provided grants to section authorities and lodging associations to marque homes suitable.